EB Friends was created under the close guidance of Cristina Perez. We shared the hope of filling a void in the EB Community. We were seeking a place where EVERYONE involved with EB, whether directly affected, a caretaker, family member, or friend could gather to share information and stories. A place where each one of these individuals could express themselves OUTSIDE the world of EB too.
This is your network as much as it is ours. You have input into how it grows and evolves. All suggestions will be considered. The only things we ask of you is to be cordial with one another publicly no matter how you are feeling. Report any alleged misinformation to us. Keep EVERYTHING on EB Friends kid safe.
The EB Friends Team are members first and are only moderating to assist you and keep the place pleasant. They do not want to be censors so, PLEASE use common sense when posting photos, videos and the written word. Thank you and have fun here!
July, 4 1983 - October 7, 2007
EB Friends is dedicated to the memory of Cristina Perez. Cristina offered the EB Community countless gifts through her wisdom, support and encouragement. Cristina was EB Friends' co-creator and mentor. This social network was her last gift to all of us.
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