EB Friends was created under the close guidance of Cristina Perez. We shared the hope of filling a void in the EB Community. We were seeking a place where EVERYONE involved with EB, whether directly affected, a caretaker, family member, or friend could gather to share information and stories. A place where each one of these individuals could express themselves OUTSIDE the world of EB too.
This is your network as much as it is ours. You have input into how it grows and evolves. All suggestions will be considered. The only things we ask of you is to be cordial with one another publicly no matter how you are feeling. Report any alleged misinformation to us. Keep EVERYTHING on EB Friends kid safe.
The EB Friends Team are members first and are only moderating to assist you and keep the place pleasant. They do not want to be censors so, PLEASE use common sense when posting photos, videos and the written word. Thank you and have fun here!
EB Friends is dedicated to the memory of Cristina Perez. Cristina offered the EB Community countless gifts through her wisdom, support and encouragement. Cristina was EB Friends' co-creator and mentor. This social network was her last gift to all of us.
Started by Sue Ostrander in UNCATEGORIZED POSTS on Thursday.
Started by Sara Denslaw in EARS, NOSE & THROAT. Last reply by Christina Cebelenski on Tuesday.
Started by Stevie Hislop εϊз in SURGERIES AND PROCEDURES. Last reply by Stevie Hislop εϊз Jan 23.
Started by Nicole Lorenz in NEW MEMBERS/NEW EB PARENTS AND CAREGIVERS. Last reply by Denise & Steve (Ryan's Parents) Jan 20.
Started by Danielle O'Keefe in FEMALE ONLY QUESTIONS. Last reply by Danielle O'Keefe Jan 16.
Started by Bart in INSPIRING STORIES. Last reply by Danielle O'Keefe Jan 9.
Started by Lindsay Amarah Kelly in INFANT CARE. Last reply by Danielle O'Keefe Jan 9.
Started by Linda Haven in INFANT CARE. Last reply by Morissa Jan 6.
Started by Toni Kathleen Mott in NEW MEMBERS/NEW EB PARENTS AND CAREGIVERS. Last reply by Morissa Jan 6.
Started by Danielle O'Keefe in UNCATEGORIZED POSTS. Last reply by Danielle O'Keefe Jan 5.
Started by Toni Kathleen Mott in SKIN AND WOUND CARE Jan 4.
Started by Kim Carlson in EYES. Last reply by anna's mommy Dec 28, 2011.
Started by Cristina Gonçalves in PREGNANCY. Last reply by Kristy Nixon Fridge Dec 23, 2011.
Started by Kristy Nixon Fridge in UNCATEGORIZED POSTS. Last reply by Kristy Nixon Fridge Dec 22, 2011.
Started by Sara Denslaw in CONNECTING WITH OTHERS. Last reply by Sara Denslaw Dec 20, 2011.
Started by Madeline Henriquez in TEETH & MOUTH. Last reply by Sara Denslaw Dec 20, 2011.
Started by Lindsay Amarah Kelly in NEW MEMBERS/NEW EB PARENTS AND CAREGIVERS. Last reply by Lindsay Amarah Kelly Dec 20, 2011.
Started by Lindsay Amarah Kelly in TEETH & MOUTH. Last reply by Danielle O'Keefe Dec 19, 2011.
Started by Melissa in BEAUTY TIPS, HYGIENE & GROOMING. Last reply by Lindsay Amarah Kelly Dec 19, 2011.
Started by Lindsay Amarah Kelly in RECOMMENDED PRODUCTS, SUPPLIES, MEDICATIONS AND SERVICES Dec 18, 2011.
Posted by Danielle O'Keefe on November 9, 2011 at 3:02pm — 5 Comments
Posted by Eric Duffield on November 7, 2011 at 5:21pm — 3 Comments
Posted by Carl Spicer on October 8, 2011 at 2:59pm — 3 Comments
Posted by Eric Duffield on September 9, 2011 at 6:05pm
Posted by Carol Paz on August 13, 2011 at 2:04am
Posted by Debra of America on August 12, 2011 at 4:00pm — 1 Comment
Posted by Evette S on July 27, 2011 at 11:26pm — 2 Comments
Posted by Evette S on July 27, 2011 at 6:51pm — 10 Comments
Posted by Evette S on July 26, 2011 at 9:23am
Posted by Evette S on July 26, 2011 at 9:06am — 4 Comments
Posted by Evette S on July 26, 2011 at 1:19am — 2 Comments
Posted by Evette S on July 25, 2011 at 6:00pm — 2 Comments
Posted by Ronnie Maas on July 21, 2011 at 10:07am — 7 Comments
Posted by Linda First on June 8, 2011 at 9:15am — 10 Comments
Posted by Eric Duffield on June 7, 2011 at 5:40pm — 4 Comments
Posted by Ronnie Maas on June 1, 2011 at 9:05pm — 1 Comment
Posted by Krystal & Darren on May 29, 2011 at 5:08pm
Posted by Ronnie Maas on May 27, 2011 at 8:01am — 2 Comments
Posted by Catherine Leeanne Smith on May 20, 2011 at 2:52am — 2 Comments
Started by Chris (Pez) in The Do Drop Inn. Last reply by Reeta Lamphere Oct 28, 2011.
Started by jamie hartley in EB STORIES. Last reply by Rosa Zerkle Dec 25, 2010.
Started by jamie hartley in MEMBERS' RAMBLINGS. Last reply by Chris (Pez) Oct 22, 2010.
Started by WEB MASTER in MEMBERS' RAMBLINGS. Last reply by Chris (Pez) Oct 16, 2010.
Started by Reeta Lamphere in The Do Drop Inn. Last reply by Chris (Pez) Oct 6, 2010.
Started by katora jene'e washington in POETRY CORNER. Last reply by Chris (Pez) Aug 26, 2010.
Started by katora jene'e washington in POETRY CORNER. Last reply by katora jene'e washington Aug 24, 2010.
Started by Chris (Pez) in MEMBERS' RAMBLINGS. Last reply by daisydoll Aug 20, 2010.
Started by Kara Blust in POETRY CORNER. Last reply by BobbiBeth W May 2, 2010.
Started by jamie hartley in POETRY CORNER. Last reply by Chris (Pez) Mar 16, 2010.
Started by Novelette in POETRY CORNER. Last reply by Novelette Mar 10, 2010.
Started by connie yates in MEMBERS' RAMBLINGS. Last reply by Lisa Paredes Feb 2, 2010.
Started by Edward in MEMBERS' RAMBLINGS. Last reply by Chris (Pez) Jan 24, 2010.
Started by Elizabeth Chabot in POETRY CORNER. Last reply by Connie Holland Jan 6, 2010.
Started by Martina D. Robinson in EB STORIES. Last reply by Martina D. Robinson Aug 20, 2009.
Started by Cristina in POETRY CORNER. Last reply by Chris (Pez) Jul 5, 2009.
Started by Gabbie's Mom in POETRY CORNER. Last reply by Chris (Pez) Jun 11, 2009.
Started by Mel Marshall in EB STORIES. Last reply by Sue Ostrander Dec 1, 2008.
Started by Chris (Pez) in MEMBERS' RAMBLINGS. Last reply by Connie Holland Aug 4, 2008.
Started by Todd Stalinski in POETRY CORNER. Last reply by Toshacat Jun 9, 2008.
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© 2012 Created by WEB MASTER.
