A place where people with Epidermolysis Bullosa, their friends and families can keep in touch UPCOMING EVENTSEdit June 19-22, 2008 - Patient Care Conference - Denver, CO - The largest gathering of EB Patients, doctors and their families in one place in the USA. Be sure to make plans to attend this bi-annual event! Learn More Here: 2008 PATIENT CARE CONFERENCE EB FRIENDS was started on March 4th, 2007. It was created in conjunction with Cristina Perez in the hopes of filling a void in the EB COMMUNITY. We were seeking a place where EVERYONE involved with EB, whether directly affected, a caretaker, family member, friend, or just a concerned citizen could gather to share information and stories. Also, a place where each one of these individuals could express themselves OUTSIDE the world of EB. We feel that while EB is a huge aspect in all our lives, there is also so much more going on outside that realm. Hopefully you will join in on the fun and use some of the things we have to offer as a stress reliever. We want to provide you with a safe haven for you to learn about, rant about and educate others about Epidermolysis Bullosa. This is your network as much as it is ours. You have input into how it grows and evolves. All suggestions will be considered and your Profile Pages are like your own little websites for you to customize any way you like. You could even turn it into a store if you want. The only things we request is that you be cordial to one another publicly, no matter how you feel (report any alleged misinformation to us), keep EVERYTHING at EB FRIENDS kid safe and refrain from soliciting goods on the main page. Ask us first. The Moderators are only here to assist you and to keep the riff raff out. They do not want to be censors so, PLEASE use common sense when posting videos, photos and the written word. Thanks and have fun here! EB Friends was created as a place of support for those affected by the skin disorder Epidermolysis Bullosa. the sensitive nature of this severe and sometimes devastating disorder help lift spirits and reduce stress that is often so much a part of EB families' lives. other non-EB related topics and/or events We encourage getting to know each other beyond our connection of EB and become true friends in a supportive community. Afterall, we are all part of the big picture. EB FRIENDS does not endorse any drugs, tests, or treatments that may be reported here. The treatment information on this network should be considered only suggestions. Please always check with your physician before adopting any medical treatment. Due to an intended action filed with the ONTARIO SUPERIOR COURT OF JUSTICE we cannot allow any mention of GENA GRUSCHOVNIK and/or THE WALK A MILE IN MY SHOES EB RELAY/RALLY to appear here on EB FRIENDS. Discussions, Videos and Photos relating to GENA GRUSCHOVNIK and/or THE WALK A MILE IN MY SHOES EB RELAY/RALLY will be immediately closed and requests to edit such posts within 48 hours will be sent to the poster. In some cases these posts may be deleted completely without any notice.Epidermolysis Bullosa (EB) is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from Epidermolysis bullosa (EB) is a group of inherited bullous disorders characterized by blister formation Epidermolysis Bullosa (EB) is an illness that causes the skin to be fragile. Because the skin is so fragile, it can be easily injured, causing painful epidermolysis bullosa eb recessive dystrophic hallopeau siemens Another rare type of epidermolysis bullosa, called epidermolysis bullosa acquisita, is an autoimmune disorder. This may be indistinguishable from another Epidermolysis bullosa, Epidermolysis bullosa is a group of inherited disorders in which skin blisters develop in response to minor injury in depth info about the severe genetic skin disorder Epidermolysis Bullosa. Includes medical care, recipes, links Epidermolysis bullosa simplex (EBS) is one of the major forms of epidermolysis bullosa. The signs and symptoms of this condition vary widely among affected blistering or erosion of the skin symptoms, causes, treatments. Includes pictures. social network support group